The Sussex Snowdrop Trust
The Trust provides vital nursing care for local
children who are dealing with the day to day challenges of having a life
threatening or terminal illness. The charity is currently supporting 76
families in the local area.
The Sussex Snowdrop Trust was founded in 1993
after Dr Anne Wallace, Community Paediatric Consultant and the Nursing sister
of the children’s ward at St Richard’s Hospital in Chichester, identified the
urgent needs of the families when their child had been diagnosed with a life
families wanted a nurse to visit them at home and support them.
teach them how to look after their child and to give them the confidence to do
• To be
able to talk about the diagnosis, prognosis, medication, treatment etc. with a
nurse who knows them and their child, who is qualified in caring for children
with such serious illnesses.
The aim of the charity is to provide specialist
nursing care from the Snowdrop Care at Home team, which includes community
paediatric nurses, a very experienced Counsellor and Nurse Support workers.
Most children live to adulthood but sadly sometimes the treatment fails, and
children become terminally ill.
Nearly all children who become terminally ill,
since Snowdrop started, have been at home, surrounded by their family. The
exceptional Snowdrop nurses and sometimes our Counsellor are with them every
step of this very difficult and heart-breaking journey.
Nursing sister of the children’s ward at St
Richard’s Hospital in Chichester, identified the urgent needs of the
One mother said after her little girl had died,
“We are so grateful for everything Snowdrop did. Being able to get care at home
made such a huge difference. Our daughter was able to be part of our family and
we have memories and photos of her being in our home. She died at home where
she wanted to be. It was the everyday things that made the difference. In
hospital you can’t be there when they first wake up in the morning or be there
to wash and feed them. Having her at home meant I was able to do normal mummy
things with her. And our son was also able to have quality time with her which
he couldn’t get at hospital."